GAN WARRIORS: January 2013

Sunday, January 27, 2013

Corvallis School Fundraiser!

Yet another great fundraiser for our GAN Warriors!
The word is getting out and people are putting their heads together, to raise awareness and funds for the cure that can not only save Levi, Alan and Aarons lives, but all children with GAN! Don't you want to be a part of that!! We said YES and so did the Corvallis School!

The Boy's basketball game vs Dillon was in full swing, with donated gift baskets lining the halls for a silent auction. Split the pot and the concession profits were going to the fund also.
T-shirts and GAN bracelets were sold and tons of awareness was made.

So cool seeing all the boys warm up in the new GAN shirts!

Shirts sold at the game that say " Kick some Giant Ax...Giant Axonal Neuropathy"

Corvallis School also put on a cheer camp fundraiser and they performed for the half time show! They did a fantastic job raising money and having fun too.
Together the grand total raised was 2875.00! Great Job Corvallis School and THANK YOU!!

Meet Levi!

Levi is five years old and attends Kindergarten. His best friends are his brother Shawn, and his cousin Simon. He has a passion for cars- they are his favorite toy. His favorite color is red. His favorite store is the Dollar Store. Levi asks alot of questions about Heaven. He's glad that there are no sick people in Heaven, but sometimes worries that he might have to go there without his mom and dad. He really wants to get better and run. He says he, "wants to be a runner like Daddy was". Levi is friendly and polite, and very patient about having a disease and being different. He has leg braces and uses a walker. At school, he uses a wheel chair for longer distances (like back and forth from the playground) to conserve energy.

Meet Aaron and Alan!

Aaron and Alan are identical twins. The best way for people to tell them apart is that Alan is missing a tooth. He knocked it out when he fell down (which he does a lot due to the disease) and hit a chair. The twins are best buddies and if they are not together, they ask where their "dud" is. They love the movie "Iron Giant", their dog Charlie, and cars- like Levi. They both have shy sweet smiles, and are very good natured children, even though they often suffer with nausea and vomiting, which is part of the disease. It's hard to be around them and not want to cuddle and hold them. They are almost four years old, and the disease has progressed to the point where they need leg braces.