Levi, Allan & Aaron suffer from Giant Axonal Neuropathy (GAN) which is a rare genetic disorder that slowly takes away one's ability to walk, use one’s hands, speak, swallow and is terminal. The disorder is so rare that there are approximately 28 people worldwide living with GAN (including Levi, Allan and Aaron).
There is no cure for GAN today but there is HOPE. Because GAN is an extremely rare disorder the funding for research and trials is very limited. Dr’s and Scientists are now working together on a new gene therapy that may halt the progression of the disease and may possibly repair some damage in nerves that are not yet dead. The first human clinical trial begins in the fall of 2012.
Please join our mission and help us save these three precious lives.You can help find a cure by offering any amount of monetary donation to www.hannahshopefund.org.
Donate all you can to cure GAN