Levi, Allan & Aaron suffer from Giant Axonal Neuropathy (GAN)
which is a rare genetic disorder that slowly takes away one's ability to walk,
use one’s hands, speak, swallow and is terminal. The disorder is
so rare that there are approximately 28 people worldwide living with GAN
(including Levi, Allan and Aaron).
There is no cure for GAN today but there is HOPE. Because
GAN is an extremely rare disorder the funding for research and trials is very
limited. Dr’s and Scientists are now working together on a new gene therapy
that may halt the progression of the disease and may possibly repair some
damage in nerves that are not yet dead.
The first human clinical trial begins in the fall of 2012.
Please join our mission and help us save these three
precious lives.
You can help find a
cure by offering any amount of monetary donation to www.hannahshopefund.org. Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." - Margaret Mead
Donate all you can to cure GAN
http://www.hannahshopefund.org/.
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