GAN WARRIORS: GAN Warriors made the news!

Sunday, May 27, 2012

GAN Warriors made the news!

The Ravalli Republic shared the GAN Warriors story! Below is the link to that article.
The Parents of GAN are doing all they can to save their children. It's up to them to find the cure.
What an inspiration they are of love and courage for their children.
Thank you Ravalli Republic for helping us spread the awareness of this deadly condition.
More awareness means a faster cure for these boys and time is not a friend of GAN.
http://ravallirepublic.com/news/local/article_45a4ded4-a76e-11e1-a05f-0019bb2963f4.html

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Meet Levi!

Levi is five years old and attends Kindergarten. His best friends are his brother Shawn, and his cousin Simon. He has a passion for cars- they are his favorite toy. His favorite color is red. His favorite store is the Dollar Store. Levi asks alot of questions about Heaven. He's glad that there are no sick people in Heaven, but sometimes worries that he might have to go there without his mom and dad. He really wants to get better and run. He says he, "wants to be a runner like Daddy was". Levi is friendly and polite, and very patient about having a disease and being different. He has leg braces and uses a walker. At school, he uses a wheel chair for longer distances (like back and forth from the playground) to conserve energy.

Meet Aaron and Alan!

Aaron and Alan are identical twins. The best way for people to tell them apart is that Alan is missing a tooth. He knocked it out when he fell down (which he does a lot due to the disease) and hit a chair. The twins are best buddies and if they are not together, they ask where their "dud" is. They love the movie "Iron Giant", their dog Charlie, and cars- like Levi. They both have shy sweet smiles, and are very good natured children, even though they often suffer with nausea and vomiting, which is part of the disease. It's hard to be around them and not want to cuddle and hold them. They are almost four years old, and the disease has progressed to the point where they need leg braces.